2 posts tagged SMA treatment acceleration act
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Enhance Efforts to Find a Treatment for Spinal Muscular Atrophy:Cosponsor the SMA Treatment Acceleration Act (HR.3334 and S.2042)
http://www.fightsma.org/ blog/ sma-treatment-acceleration-act/ enhance-efforts-t…Spinal Muscular Atrophy (SMA) is a hereditary disorder that destroys the nerves controlling voluntary muscle movement. It is the number one genetic killer of children under the age of two. SMA is a relatively common “rare disorder.” It is estimated that SMA occurs in about 1 in every 6,000 births.
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End of the Year Update on The SMA Treatment Acceleration Act
http://www.fightsma.org/ blog/ sma-treatment-acceleration-act/ end-of-the-year-u…The year 2007 has been successful for the SMA community on Capitol Hill, most notably with the introduction of the SMA Treatment Acceleration Act in both the U.S. House of Representatives and U.S. Senate. This legislation (H.R. 3334/S.